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The NICU Space by Miracle Moon

Miracle Moon
The NICU Space by Miracle Moon
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  • Group B Strep at 3 Days Old, Cerebral Palsy and Epilepsy: Kate’s Story of Disability Acceptance and Hope | S3E62
    Kate’s son Frank battled group B strep meningitis at just 3 days old, which led to him being diagnosed with cerebral palsy and epilepsy. Kate shares with us her hospital experience, her fears that his conditions would limit his life, and how she accepted and came to terms with the life her family now lives.Frank is a happy, giggly child and Kate is a wonderful influence for parents going through similar experiences to hers, you can follow her now “@overatkates”.In this episode, we’re chatting about:- The events that followed after Kate’s son, Frank, contracted group B strep at 3 days old- What group B strep is and the aftermath of the infection- Coming to terms with her son’s diagnoses of cerebral palsy and epilepsy- Staying positive and how to move towards acceptance 💌 Check out the full show notes for this episode here, where you can find timestamps, a transcript and any links or resources we think are relevant to this episode. If this episode resonates with you or if you have questions, reach out to us on Instagram or shoot us an email at [email protected].🎧 We love engaging with our listeners! Share a screenshot of this episode and don't forget to tag us on Instagram ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠@miraclemoonuk⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ when you're tuning in.⭐️ Help us spread the word by leaving a review and subscribing...that way, you won't miss a single episode.
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  • Stories of NICU from 3 Preemie Parents | S3E61
    In today’s episode, we’re talking to three preemie parents about their NICU experiences and premature births – we discuss everything from preparing for a NICU stay, to the mental health impact afterwards, and even if there were any good parts of NICU. If you’ve got your own NICU story, we’re sure you’ll find similarities in our guests' experiences, and remind yourself that you’re not alone – help and support is out there.In this episode, we’re joined by:- Hanna, mum to 4 year old twin girls Ruby & Scarlet who were born at 27 weeks after a difficult pregnancy and spent 10 months in NICU and PICU- Sammy, mum to Niamh, born unexpectedly early at 31 weeks after a smooth pregnancy and spent 6 weeks in special care- Katy, mum to 3 year old Finley who had an expected NICU stay after he was born at 31 weeks due to a placental issue and spent 6 weeks in NICU across 2 hospitals💌 Check out the full show notes for this episode here, where you can find timestamps, a transcript and any links or resources we think are relevant to this episode. If this episode resonates with you or if you have questions, reach out to us on Instagram or shoot us an email at [email protected].🎧 We love engaging with our listeners! Share a screenshot of this episode and don't forget to tag us on Instagram ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠@miraclemoonuk⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ when you're tuning in.⭐️ Help us spread the word by leaving a review and subscribing...that way, you won't miss a single episode.
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  • From 20 Weeks to 30 Years: How TEDx Speaker and CEO Audrey Williams Joseph Turned Her NICU Experience Into Lifelong Change | S3E60
    When she went into labour at 20 weeks pregnant, Audrey Williams Joseph was told that her baby would not survive. 30 years later, he’s living his life and was Audrey’s inspiration for creating the support that she never had in the 90s – six residential care homes for children and adults that have additional needs. Audrey is a true inspiration, and this episode will help you to redefine what you think of as winning, and celebrate the small moments that make up each day.In this episode, we’re chatting about:- Audrey’s son, who was born at 20 weeks and wasn’t expected to survive- The impact of being in limbo in NICU- Having faith to stay strong and overcome doctors’ predictions- How Audrey turned her experience into a mission to create care homes💌 Check out the full show notes for this episode here, where you can find timestamps, a transcript and any links or resources we think are relevant to this episode. If this episode resonates with you or if you have questions, reach out to us on Instagram or shoot us an email at [email protected].🎧 We love engaging with our listeners! Share a screenshot of this episode and don't forget to tag us on Instagram ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠@miraclemoonuk⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ when you're tuning in.⭐️ Help us spread the word by leaving a review and subscribing...that way, you won't miss a single episode.
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  • Family Integrated Care in NICU | S3E59
    Family Integrated Care is such an important thing for NICUs to implement – after all, it’s not just the baby in NICU that’s going through the experience. On today’s podcast episode, we’re hosting a round table discussion with parents and professionals alike to discuss what FICare is, how NICUs can improve how they offer it, and what the future holds for it. We’re joined by:- Emily, a Neonatal Consultant from Liverpool- Chessie, a Clinical Psychologist from Bristol- Colm, an Advanced Neonatal Nurse Practitioner from Northern Ireland- And Sue, mum to Luke who was born at 30 weeks and spent two months in NICUWhether you know anything about FICare already or not, today’s episode is an important listen that shows how we can make improvements to include the whole family in neonatal care.💌 Check out the full show notes for this episode here, where you can find timestamps, a transcript and any links or resources we think are relevant to this episode. If this episode resonates with you or if you have questions, reach out to us on Instagram or shoot us an email at [email protected].🎧 We love engaging with our listeners! Share a screenshot of this episode and don't forget to tag us on Instagram ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠@miraclemoonuk⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ when you're tuning in.⭐️ Help us spread the word by leaving a review and subscribing...that way, you won't miss a single episode.🙏 A huge thank you to Emma at Cover My Bubble for supporting our podcast - you can find out more about all that Cover My Bubble offer at ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠www.covermybubble.co.uk
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  • Seven Rounds of IVF, Pregnant with Twins, Loss and Twice in NICU with Aideen | S3E58
    In this powerful episode, Aideen (@ivfmumblings) shares her honest story of infertility, IVF, NICU, and loss. After seven rounds of IVF, she became pregnant with twins, but at 30 weeks she went into premature labour, was put under general anaesthetic for an emergency section, and lost one of her babies to suspected NEC.Only four months later, she conceived naturally and found herself back in NICU at 36 weeks. Now pregnant again, Aideen opens up about how she’s advocating for herself this time, the importance of mental health support after NICU, and what she wishes she’d known then.In this episode, we’re chatting about:- Going through IVF – not just once, but seven times- Being pregnant with twins and then going into NICU- The unimaginable pain of losing a twin- Going through subsequent pregnancies (even natural ones) after baby loss- How to advocate for yourself in NICU and during pregnancy after loss💌 Check out the full show notes for this episode here, where you can find timestamps, a transcript and any links or resources we think are relevant to this episode. If this episode resonates with you or if you have questions, reach out to us on Instagram or shoot us an email at [email protected].🎧 We love engaging with our listeners! Share a screenshot of this episode and don't forget to tag us on Instagram ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠@miraclemoonuk⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠ when you're tuning in.⭐️ Help us spread the word by leaving a review and subscribing...that way, you won't miss a single episode.🙏 A huge thank you to Emma at Cover My Bubble for supporting our podcast - you can find out more about all that Cover My Bubble offer at ⁠⁠⁠⁠⁠⁠⁠⁠⁠⁠www.covermybubble.co.uk
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About The NICU Space by Miracle Moon

If you are a NICU parent, past, present or future, this podcast is here to support you through it all. Hosted by the co-founders of Miracle Moon, Frankie, a Clinical Psychologist and Georgie. We are so excited to be back and talking about all things NICU, birth trauma and perinatal mental health with you. We are a couple of past NICU Mums who have got together to support others through their NICU journeys and beyond.
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