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Amplifying the Patient Journey

Practical Neurology
Amplifying the Patient Journey
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  • Mastering Migraine
    Melody Barthelemy, a human resources specialist, details her experiences living with migraine, including strategies for tracking episodes and thriving with a busy career. She is joined by Dawn C. Buse, PhD, Clinical Professor, Albert Einstein College of Medicine, New York, NY, who discusses recent research in the field.
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    25:14
  • The Importance of Early Diagnosis and Treatment of Alzheimer Disease
    Linda Shows, a semi-retired nurse who lives with mild cognitive impairment, and her physician, Wendell Helveston, MD, Hattiesburg Clinic, Hattiesburg, MS, discuss the importance of early diagnosis and treatment in Alzheimer disease, including other factors that can help patients thrive when living with this condition.
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    21:27
  • Rehabilitation after Traumatic Brain Injury (TBI)
    After an attack leading to multiple surgeries and a traumatic brain injury, survivor Kel Mabatah developed a rehabilitation scholarship that enables TBI patients to continue therapy after insurance runs out. Kel is joined by Alfreida Melvin, mother of Dontel, who is a recipient of the scholarship from the “Kel Strong” Mabatah Foundation. https://www.kelstrongfoundation.com/
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    23:42
  • Redefining Life with Friedreich Ataxia
    We speak with neuromuscular disease expert David Lynch, MD, PhD, attending neurologist in the Division of Neurology at Children's Hospital of Philadelphia and director of the Friedreich Ataxia Program, about the emerging treatment landscape for Friedeich Ataxia as well as Kiersten Riggs, who discusses the events leading to her Friedrich Ataxia diagnosis and how she has adapted to life with Friedrich ataxia.
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    11:41
  • Young-Onset ALS: Diagnosis and Research
    In this episode, Gwen Petersen discusses her long journey to receiving an ALS diagnosis at age 32, her contributions to a Cytokinetics book project, and the importance of clinical trial participation. We are also joined by Merit Cudkowicz, MD, MSc, Head of the Department of Neurology, Chief of Neurology, and Director of the Sean M. Healey & AMG Center for ALS at Massachusetts General Hospital in Boston, MA who discusses the PLATFORM-ALS trial and the drugs currently in the clinical research and development pipeline.
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    20:10

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About Amplifying the Patient Journey

The heart of clinical practice is the patient. In this series, we speak with both providers and patients about the clinical journey with a neurologic condition, and what recent advances mean for patients, their providers, and caregivers.

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